Hi Guys,
I hope you are all keeping okay. I’m sure some of the Regulars and
Old-timers will remember me. I used to post on these message boards
often in the past but had a little break since April so that I could
sort out some problems of mine (hic!:)
I just wanted to say that I am on the mend now and wanted to return
slowly to the message boards. Mainly, I wanted to wish everyone a
really Happy Xmas.
In time we will find all the answers we need, but for now, life is
short, so please live it the best you can. That is my message I
guess. I just wanted to express to everyone a ray of light that it
is my firm belief that we will eventually overcome this problem.
It is my belief that many of us on these message boards suffer from
a variety of enzyme disorders. Some are properly scientifically
documented (eg trimethylaminuria) whilst others are not (AND ARE
DIFFICULT TO RESEARCH!) but do appear very similar in nature
(missing/mutated enzyme and overgrowth of gut/tongue flora).
In many of us, for some reason what we eat dictates how we smell and
I think many of us agree on this. If you are a follower of the Low
Choline diet or the Candida diet or the Low Dairy/Carbs diet or the
Vegan diet then we are really all in agreement that one of the ways
in which we can influence our odor is through diet. With time, we
will find other ways too and this is all about trial and error.
One of my reasons for returning on these message boards is to enjoy
the comradeship and empathy which we all share. But another reason
is that I would like to participate in surveys which I believe may
assist researchers in better understanding our conditions.
In time, the nature of these surveys will become more evident. But
it is my strong belief that a survey should only ask purposeful
questions that will eventually assist us in some way. So, the kind
of things that will especially be of interest to me are other
conditions you may suffer from (eg loose/smelly motions, aggravating
foods, white tongue coating, liver or kidney disease etc).
I am hoping to find one or two people who will help me with such
surveys and somebody with some IT skills so that we can have a well
structured database that reflects our surveys in a useful fashion.
The database should be an area that every member can contribute to
but should be of limited space so that only the salient points can
be listed.
Nobody has time to go through the thousands of old messages on these
sites but clicking on ‘Database’ and inputting your details and
examining other’s details should be easy. Everyone should have a
small space where they can say something important in the database
which is easily accessible to all other members at the click of a
button. Don’t you agree?
Okay, so who will help me?! ….Come on now! …don’t step back so
quickly!
Name withheld